Sunday, January 6, 2013

Hopefully Tuesday

Esther has been doing really well! She's transitioned all of her meds to oral and today was the last day of her pain pump. She still has a narcotic ordered if she needs it, but things are looking good.

For the last two days Esther's heart has been racing, in the 150s-160s even when she's resting. The doctors would like to do an EKG tomorrow to make sure nothing is overlooked with her heart. Tonight it was down in the 130s, so that's better.

The other thing that might hold us here is some diarrhea. That is one of the "call the clinic right away" things on our discharge list, so I'm guessing it could keep her here a couple more days just to rule out any infections. We'll see, no one has requested a sample and she's not on isolation precautions, so that's good.

We've been passing the time the last couple of days with fun things. Yesterday was musical nurses, with 4 nurses. It's a good thing we love our nurses. She was able to even have Miss Rebecca for part of the day. That part included me not setting my mom up for success very well and leaving her with a TIRED, GRUMPY girl at bath time. Whoops!

All in all, it's been great. She had her Mr. Ricardo today, so all was sunny and bright. Here's some ways we've been making hospital living fun....

Walks! It is very uncommon for transplant patients to not be on isolation precautions (this means when anyone enters the room they have to wear a gown/and or mask and if I leave, I have to do the same. Since she's not on isolation, she can walk. The new unit is great! It's much bigger than the old BMT unit which was a small horse shoe. This is more like a normal floor and she can do laps. Her legs are pretty weak and wobbly, so it's good to get out and exercise. We've come to an agreement that if she walks a lap, I'll let her ride a lap in the stroller. Ricardo called it her victory lap.

Puzzles, puzzles, puzzles.

I've been trying to portion out her food in these little tea cups and plates. She really can only stomach a few bites of anything and texture is not her friend.
The new tray goes HIGH. Probably 4 1/2 feet high, so we took advantage of a blanket fort opportunity!
Under the tent we played with her fun stacking flowers, read about adventures to find the North Pole in the hundred acre woods, and played tricks on Mr. Ricardo. Esther was convinced he would never find her under her tent.


  1. What a blessing to see Esther enjoying tea cups (and plates), string cheese, and blanket forts. These are things that every child loves!

    We'll be praying for Tuesday, recognizing that so many prayers have been answered here in this round. God is good!

  2. Prayers continue to go out daily. Those smiles made my night! I love those smiles!! You're an amazing woman of strength Sam. You are truly an inspiration to all women. And that gorgeous, adorable, precious Esther ... what a cutie! Thanks for the updates.

  3. She's looking so good! Hoping today (Tuesday) is the day for discharge!