Friday, July 13, 2012

Maybe we'll get a bogo!

What a day. This morning Esther's counts were 160...that's GREAT and she was discharged. Uncle Casey was so kind to drive down to get Esther and her Daddy so the rest of us could go to church. I was really encouraged from the message when our good friend (and pastor) shared about prayer and why to pray. His rhetorical question was why do we pray if God's got it all worked out anyway?  

He shared from Luke Chapter 11 where the Lord's Prayer is found. Jesus gives an example and then goes on to exhort the disciples to keep asking...

5 And he said to them, “Which of you who has a friend will go to him at midnight and say to him, ‘Friend, lend me three loaves, 6 for a friend of mine has arrived on a journey, and I have nothing to set before him’; 7 and he will answer from within, ‘Do not bother me; the door is now shut, and my children are with me in bed. I cannot get up and give you anything’? 8 I tell you, though he will not get up and give him anything because he is his friend, yet because of his impudence he will rise and give him whatever he needs. 9 And I tell you, ask, and it will be given to you; seek, and you will find; knock, and it will be opened to you. 10 For everyone who asks receives, and the one who seeks finds, and to the one who knocks it will be opened. 11 What father among you, if his son asks for a fish, will instead of a fish give him a serpent; 12 or if he asks for an egg, will give him a scorpion? 13 If you then, who are evil, know how to give good gifts to your children, how much more will the heavenly Father give the Holy Spirit to those who ask him!”

Our pastor's encouragement was to be that neighbor and to just keep knocking. Not demanding, but to not give up on our requests. This was encouragement to me...I can feel like answer to prayer should be immediate and if the answer I want isn't coming about, God's answer must be no. I was encouraged to have the freedom to just keep knocking. God has good gifts for us!

It was so good to sing with our church body in Ft. Collins, be refreshed to knock, and remember Jesus' precious gift through communion. About 30 minutes after we got home, everyone was home.

Anthony and Aunt Margarita took the older kids to see a movie while Zinnia & Esther napped. When Esther woke up she had another fever...103. She'd only been home about 3 hours. I gave her some water and it went down to about 102.5. We're supposed to call at 101...that phone call really sucked.

We were able to drive to Denver this time. When we arrived they accessed her port and checked her blood counts. They jumped from 160 this morning to 550 in about twelve hours. The ER doc told me she was shocked to see a jump like that, calling it "miraculous." We were teased with a hint to discharge, but alas, they want to be sure she doesn't have an intestinal infection. They took x-rays and found she's really stopped up but the best way to look for this infection is a ct scan. The oncology doctor decided rather than expose her to more radiation from a ct scan, it's better to just observe her overnight.

I've been peaceful today through it all and am thankful for miraculous ANC jumps and see the humor in a big, smart radiologist having to look at pictures of poop. I just went to get something to eat while Esther sleeps...I got a "Beast" breakfast burrito. It was good and would've served my entire family breakfast...well, maybe not if Rourke was eating ;). So, if you're ever ordering from the late night menu at Children's, I'd reccomend it and this slogan..."prepare to share."

Another benefit of this overnight visit is I'm hoping to get some time with a child life specialist tomorrow. Esther's hair is beginning to fall and she's worried about it. They have some resources to make it less scary and help her understand that it will come back. I am amazed at her femininity in all of it. Her biggest fear is that she'll look like a boy....that's another post.

My biggest question for the night is if since she woke up here and is going to bed here, will we get a bogo?


  1. I'd give ya a it an extended "walk" that she got to have out of her room :) Praying that tonight goes well, and everything comes out well (literally too!) and that peace continues to reign. Love you. SO MUCH.
    amber for all :)

  2. Hi Sam,
    I'm preparing to leave state in about a month to do mt Child Life Internship! So I can get certified, I lost my husband to brain cancer at Children's in 2001 when we had 3 lil ones. My life was forever changed by what the child life specialists have to offer!!! So much so that I returned to school for that profession. My passion is oncology and I would love to work with you, Esther and your whole family during your journey if you would like! Children's will assign one for you as well but keep in mind they have many patients to see : ) it's a very important process and huge help in understanding and normalizing this whole new process for you all! Way to go on reaching out for one!!! Hugs Sarah